tripping: how God meets with us when life gets tough – snapshot #3

tripping - how God uses everything we go through - snapshot #3

We’re caught by surprise sometimes on attempting things we used to do before with relative ease but now find challenging. I’m largely housebound and incapacitated by chronic illness, but I can still totter around my small home and navigate a few steps (albeit painfully and slowly) most of the time.

But set my feet on concrete, ask me to pound pavement, and I’m all over the place, unsteady as can be. I have bad balance, limb stiffness, weakness and pain to contend with, which makes walking very slow, arduous at best and impossible at worst, when the territory is uneven.

Years ago I realised that a wheelchair was the best mode of transport for me. Sadly, there wasn’t anyone reliably able, available and fit enough to take me out in one, so I only borrowed a set of wheels when it was absolutely necessary.

I made a trip to the city recently and thought I would try to get there by bus, knowing how hard it can be to park the car.  I wanted to try stretching my limbs and limits (maybe you can relate?) in the vain hope of being able to accompany my grandson home from his first day at school next week.

Dear reader, I struggled. Pain was severe and I nearly cried out loud. I halted several times and barely covered one third of the necessary distance to reach my school collection goal. We caught a taxi home.

Later on, as I sat with frustration, I looked at my photos and wrote a poem about the experience. It was a surprise grace gift, arising from a hard thing, such as God delights to provide for you and me. Things don’t seem so bad when viewed from God’s perspective. I can’t manage the walk but I can be the one welcoming our grandson home at the door.

God is constantly rewriting our stories, blending them into His greater narrative. What seems to be causing us to fall just might lift our souls more than we can know. I’m grateful for God’s keeping power and my dependence on Him, even if my story has taken several unwanted twists and turns.

tripping - God is constantly rewriting our stories quote (C)joylenton @poetryjoy.com

Here’s the tanka pentaptych poem that arose from my tough time above…

Tripping

visit to the city
idle bus window browsing
I need new specs
I like my life blurry
not in such sharp focus

people mill
cluster around attractions
bright eared hares
decorating the pavement
we see them everywhere

I’m unsteady
my gait uneasy outside
like a drunk
I stumble and cling hard
holding on to stick and arm

these sea legs
wobble over cobbles
trip on the cracks
cannot go far without sinking
I feel like turning back

air is crisp
scent of leaves, fuel, flowers
August at an end
much is dead or dying
pain reminds me I’m alive
© joylenton

How has God met you at your point of need? Have you been able to trace His hand in the hard experiences of life? Let’s encourage one another in the comments below.

tripping tanka poem excerpt (C)joylenton @poetryjoy.com

ME: what it’s like to live with ME and chronic illness

 

How do you describe a life of continual illness, pain and profound fatigue? It’s hard, isn’t it?  We need empathy, compassion, and maybe someone who lives with the illness to show us. I’d like to be that person for you today.

Imagine wanting to be a vibrant, blooming flower for God, but you droop, fade easily, curl up with fatigue. You seek shade, because all bright light hurts your eyes. Sleep is fitful but it’s all you really want to do. So called ‘normal’ life is far too dazzling, hectic and loud for you to join in with for very long.

“Yes, I have M.E but it doesn’t have me; God does, and I am safe in His arms.” So runs the last line from a poem I penned to try to describe my life with M.E. Spanning over 25 years of sickness and weakness, M.E might have stolen my health and vitality but it doesn’t get to have the final say on who I am or, more importantly, Whose I am.

I’m housebound with M.E, fibromyalgia, arthritis and hypermobility syndrome. (You can see the myriad symptoms of M.E in this list.I rely heavily on God’s sustaining grace each day. I also have a Lottery winner tendency to spend, spend, spend whenever a little more energy or mental focus is present, instead of the usual resting and pacing after any activity!

 

As a writer and a poet I’m able to express some of the frustrations of living with such an illness. I’m hoping, as you read the poem below, that you might stop to contemplate just what M.E can feel like on this, M.E Awareness Day, part of raised awareness during the month of May.

Earthbound

A mind

blurred as fog

cloud of unknowing

sinking bog

slowed and stagnant

just tiny ripples rising

from the smog

vague on the horizon

 

A body

wearied beyond measure

bandage-bound

by pain, fatigue

long and profound

unrelenting weakness

rooting to the ground

muscle-chained down

 

A heart 

longing to be free

like eagles soaring

near the sun

to touch the heat

of healing rays

piercing us undone

from darkest days

 

A spirit

lifted up by love’s call

taken up to places

out of reach of all

that holds us prisoner

to the earth

united to the One 

who gives us life and birth

©joylenton

The poem above comes from my book, ‘Seeking Solace: Discovering Grace in Life’s Hard Places’, available on Amazon. Earthbound was actually its working title for a while. All proceeds from every copy sold go to Action for ME, a charity which raises awareness and supports carers and sufferers, while raising funds for research purposes.

Last year I wrote about life from the other side of living with M.E and chronic illness, singing my beloved husband’s praises as my carer. It was written before he became even more unwell himself. You can read that post here.

Thank you for being here, my friend, and for reading my words. Your sweet presence helps and encourages this weary woman more than you know!  🙂 ❤

A moment in time

seeking and finding PJ

Some moments are frozen in time, stilled in sense and sight. Etched on our minds and engraved in our memories.

I’m remembering a week when my beloved was away for a few days and (very thoughtfully) provided me with meals in the freezer.

All lovingly home-cooked and pre-prepared ahead of time. Yes I know, I’m one blessed woman!

There was even a typed list of what to find where and how to deal with it. How’s that for organisation?

He takes such good care of me; his hands willing to work on my behalf since he lost paid employment, and despite having developed Parkinson’s disease over the last 2 years.

Thankfully, he can still do most things he used to do before his diagnosis, albeit slower, with a degree of pain and fatigue.

I’m not completely helpless in a kitchen. I can muster up coffee, breakfast and a snack, but I am unused to coping alone with main meals.

Because cooking and cleaning are lost arts to me since I’ve become more chronically unwell with arthritis, fibromyalgia and M.E.

I can’t stand for long,  lift or carry much, can only walk a few steps unaided experience a great deal of muscle and joint pain plus profound fatigue on a daily basis, cognitive problems, brain fog and hypersensitivity to light and sound.

Thankfully, my husband actually loves to cook because he’s pretty good at it and preparing meals relaxes him.

We may live a rather limited life compared to some, yet we are grateful for small mercies and experience moments of  joy in little things.

The poem below speaks about my determination to press past my problems and push myself to enjoy a moment in time – although it’s not a recommended practice for those with M.E to extend themselves too much. Sadly, there’s always a payback afterwards. 😦

A moment in time

a moment in time laundry PJ

It’s only a moment in time

as I heed the inner need

to step outside a while

My senses alert to burgeoning

life as I peg laundry to line

I feel warm sun rays

playing on my face

like a heaven’s breath

benediction of grace

Whistling wind whips swift

tussling through hair and

trees, its resonant notes

vibrating each green leaf

Echoed in chiming ice-cream

van, roaming nearby streets,

while ‘sun has got its hat on’

sounds make children fleet of feet

My arms and legs ache so

with every move I make

And this bitter-sweet task

is no mean feat for me

Although washing is often

dried inside, today I yield,

follow my heart’s yearning,

welcoming embrace of Spring

©JoyLenton2015

a moment in time PJ pin

**I’m editing and sharing this pre-prepared post I’d intended to share last year, because my health remains rather challenging at the moment and fresh inspiration is a bit thin on the ground. Hopefully normal service will be resumed as soon as possible. Thank you for your grace! ** 🙂

Seeing beauty in the everyday

countryside flowers ~ file image WoJ

Sometimes we don’t have to travel far at all to see the wonder of the world.

It’s right here, on our doorstep.

Well within our vision.

There is beauty in the everyday.

Cause to celebrate the commonplace.

Eyes enhanced by grace see more than meets the eye.

Blessings abounding for the discerning.

We learn to marry the marvellous with the mundane.

I have had my eyes opened to enchantment.

My soul woken to the wonder woven through each day.

Being housebound means that each opportunity and ability to leave the confines of four walls is reason to rejoice.

Yes, even in a hospital waiting room, a trip to the doctor or the dentist! Surprising encounters can lift our days if we look for them.

I record #beautyintheeveryday on my Instagram feed as memory markers for darker, gloomier days.

All around we are offered opportunities to see life and to see it whole, to witness the outpouring of God’s goodness, glory and grace.

A short journey gives me a chance to see abundance of new life as sap rises in Spring, sultry, hazy, lazy days of Summer unfold, Autumn reveals her golden-clothed splendour, and Winter creeps its silvery, icy fingers on the land.

The poem below is celebrating my brief trips out in recent months, with a wistful looking forward to future ones.

‘Sightseeing’

countryside view

I didn’t travel far

beyond my front door

Just sitting in the car

delighting in the things I saw

Landscapes, clouds and sky

spoke out God’s beauty

to me as I watched

and sighed. And trees

bloomed fresh and green

then shed their coat of leaves

in russet-gold of varied hues

midst fluffy-white and cobalt-blue

I didn’t get to see

or smell the salt-tanged air

of sea, or watch as

waves rose and fell

upon the sand

Though my heart desires

to see the coast

and ponder on eternity

as life swells forth

in ebbs and tides

amongst the surf

unto infinity

©JoyLenton2014

coast ~ PJ file pin image

The heat is on

The heat is on.

Time to seek some shade.

Find ways to stay cool, calm and collected.

I love the long, sunny days but I’m fazed and frazzled by heat-waves. Maybe you too?

It’s too hot to think straight, write eloquently (or much at all, truth be told) or be active in any way.

I’ve been taking a social media and blogging break which I desperately needed.

My health has been challenging for some time, with increased weakness, pain and fatigue, so rest and recuperation remain my top priority.

And as I recover some strength, pacing my ‘activities’ carefully, I want to just touch base with you as a way of making a gradual return to my usual routines.

I’m largely housebound with M.E and chronic illness, and going on holiday is a distant dream, but there’s no harm in taking myself there by the power of imagination.

Which is what I have done with the poetic summer snippets below that were written some time ago.

I share them now as a way to say “Hi. I’m still here”, even though I may be struggling with feeling further flattened by the heat and humidity we have now in the UK!

You are not forgotten and I miss our conversations here.

Hope the weather is suiting you, wherever you are, and you can make the most of warm, sunny days.

With blessings and love until we meet again. Xx 🙂

Come away with me beach poem pin image

‘Sunbathing’

Solid clumps of

people

sticking to

hot blades of

grass

The park abounds in

bodies

Frozen marrows of

idle

flesh which

blinks at frequent

intervals

They stir softly in

slumber

Deadened senses of

minds

groping after

clarity

focusing on nothing

Self-instincts admit

to ~ inactivity

©JoyLenton2014

bodies ~ sunbathing in the park poem pin image